tag:blogger.com,1999:blog-2414226327667729346.post8313838493356941174..comments2023-08-10T04:06:58.982-07:00Comments on Breaking The Silence: Trusting My Mother's IntuitionJulie Toonehttp://www.blogger.com/profile/14175618637772132446noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2414226327667729346.post-20818235248680972152012-02-13T09:30:41.000-08:002012-02-13T09:30:41.000-08:00Sorry second part of message seems to have disappe...Sorry second part of message seems to have disappeared. Over 80 families with children with PVNH have joined and excahnges stories , advice and support each other. You can join through facebook. you can also contact yolaine at<br />info@pvnhsupport.com <br />best whishes<br />Elisaelisahttps://www.blogger.com/profile/03434006870675898876noreply@blogger.comtag:blogger.com,1999:blog-2414226327667729346.post-83875485782139198692012-02-11T03:36:11.740-08:002012-02-11T03:36:11.740-08:00Julie, Do you know about Yolaine Dupont's Face...Julie, Do you know about Yolaine Dupont's Facebook group<br />X-linked Periventricular Nodular Heterotopia (PVNH)?<br />Elisaelisahttps://www.blogger.com/profile/03434006870675898876noreply@blogger.comtag:blogger.com,1999:blog-2414226327667729346.post-53019019289844816262011-12-29T00:04:03.804-08:002011-12-29T00:04:03.804-08:00Julie...I love you...and you are an incredible, st...Julie...I love you...and you are an incredible, strong woman. Cam is lucky to have you as his mom...a mom that is willing to listen to those feelings you get and go after them 100%. Here is a big hug from me!!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2414226327667729346.post-92170063833050770782011-12-27T22:17:40.398-08:002011-12-27T22:17:40.398-08:00Oh Jules, my heart is breaking for you. Not becaus...Oh Jules, my heart is breaking for you. Not because Cam isn't as perfect as you want him to be, but because I understand completely how you feel. My Maddie has to go in next week for her 8th ear surgery the 3rd major one in the last 13 months. It is heart breaking to have to watch your child go through all that testing, and even though you get a diagnosis, you still really know nothing of what to expect. All I do know is that Mothers, like us, who GET to be mothers to these ANGELS, have been chosen because we were and are among the most beloved of our Father. I feel the closest to him when I kneel and pour out my heart to him over concern for Maddie. He loves us for the sacrifices we have made to be their Mothers. He knows the desires of your heart and Cam's. Just keep listening and he will guide you. I love you and miss you and I am here if you need me.sprmomhttps://www.blogger.com/profile/01590400849608327864noreply@blogger.com